Kids Club
The Muscular Dystrophy Association of Western Australia launched The Quokka Kids Club, Teen Club and Quokka Crew, a brand new initiative for kids and teens who have neuromuscular and neurological disorders and related conditions in 2007.The Quokka Clubs were initiated because MDA saw a need for these special children and adolescence to have the opportunity to attend and take part in activities that are difficult for them to gain access to.
The Quokka Clubs is a service provided to our members and their families to enable them to take part in every day activities that may be harder for them to organise or gain access to. The Club gives parents, children and teens affected by a neuromuscular disorder the opportunity to support each other and develop valuable friendships.
Activities and excursions such as camps, fishing days, boat trips, picnics, zoo excursions, movies, football games, sport matches, Easter and Christmas celebrations, fun days... and many more exciting opportunities that their hearts desire.
If you would like to take part contact Brianna or Brooke on 9346 3955
2009 Tax appeal
Many people think of muscular dystrophy as a condition diagnosed in the early years of childhood but at 55 Sue found out that isn’t always the case. Sue knew that there was something wrong with her ever weakening muscles, but kept it secret from even her GP for fear of how it would affect her career as a university and TAFE lecturer. It was only when she couldn’t manage any more that she soughtmedical advice and was diagnosed with a neuromuscular condition. “After that first diagnosis of Mitochondrial Myopathy Cytopathy I didn’t know where to go,” says Sue. “So I sent an email to the Muscular Dystrophy Association of WA (MDA WA) and Lesley Murphy, Director of Community Services, suggested I come in to see her. Lesley sat down with me and talked about my diagnosis and really made me feel
much better and very, very welcome. She was wonderful. MDA WA let me know that if I needed help or wanted to ask anything, there was someone there. “Having contact with the MDA WA has made me quite a different person, a better person. I’ve learned to stop looking at my disabilities and instead appreciate life and make the most of the abilities I still have. I’ve met a lot of people with muscular dystrophy and I’ve realised just how lucky I’ve been, and how so many of them have used their ‘abilities’ to really contribute to life. “I would ask anyone to please donate to MDA WA and help the Association to continue to provide community support to Western Australians living with a neuromuscular condition, and support the imperative research that’s being carried out to find a cure” Sue Chia 58. MDA WA helps hundreds of children, adults and families in our community, living with muscular dystrophy or an allied neuromuscular condition. We help by providing information and services including counselling and access to equipment to help people with mobility, as well as the opportunity to meet others facing similar challenges. But we can’t do it without your help. Our funding to provide these vital services and the tireless work to find a cure relies totally on the donations we receive from people like you.
2009/2010 Entertainment Books
The 2009/2010 Enterainment books ar now avaialable from MDAWA. Entertainment books sell for $65 and contain hundreds of 25 - 50% off and two-for-one offers from popular restaurants, cafes, takeaways, cinemas, hotels, the arts, and sporting events in and around Perth. They is truley something for everyone.
So if you can't think of a gift for the person who has everything..contact MDA on
Charity Auction
The Muscular Dystrophy Association of WA will hold its 37th Annual Charity Auction on in December, which is kindly supported by our friends at Kailis Bros. Donations over the years have included a wide variety of items ranging from seafood to pasta, sporting memorabilia to fishing equipment, wine, fresh produce, but...... any product or other contribution that you can make would be gratefully appreciaed.
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Muscular Dystrophy Association of WA
Muscular Dystrophy is just one of the many neuromuscular diseases that affect both adults and children.
The Muscular Dystrophy Association of Western Australia has supported the research undertaken at the Institute for 40 years.
Their tireless efforts raising funds are most appreciated.
If you would like to be involved with their fundraising events, be a much needed volunteer, put us in your will or make a donation please contact them on 9346 3955.
Events they are undertaking are:
Golf Classic
Perth Heat vs USA Allstars
Wine and Cheese tasting at Leeuwin Barracks
2009 tax appeal
The 2009 MDA Golf Classic
The 2009 Muscular Dystrophy Association Golf Classic was once again a fun filled day with money raised going towards the important research being undertaken by the researchers of the ANRI, to help them find a treatment for Muscular Dystrophy.
If you’re interested in putting a team together for next years challenge, contact Brooke on
And help us find a cure for Muscular Dystrophy
Cough Assist Campaign
The Cough Assist Machine is a non-invasive device designed to assist patients with a breathing difficulties or weak chest muscles by enhancing or replacing the natural removal of bronchial secretions via “mechanical insufflation-exsufflation”. The inducement of a slow inhale and rapid exhale airflow encourages natural coughing, yet avoids the potential problems associated with more invasive procedures.Those unable to cough, and accumulated secretions, even from a mild cold, make them prone to complications such as pneumonia and bronchitis. Prolonged congestion has lead to patient suffering episodes of hypoxia and subsequent neurological damage.
The health and wellbeing of patients would be greatly improved by the regular use of the Cough Assist. The device assists patients to inspire and then cough to clear to respiratory tract subsequently avoiding complications. Improving quality of life for patients and helping to prolong their life span at a reduced cost to the community would be a natural consequence of providing access to this device.
MDAWA is able to purchase Cough Assist MI-E for $7,000.00 Australian dollars. Our aim is to provided a unit to each person or family in need. $7,000.00 is a lot of money and we are currently trying to source funding, not an easy venture by any means. If you can help us on our Cough Assist Campaign or know someone who can please contact Brooke Anthony in the MDAWA Office on (08) 9382 2700.